VP, Medical Communication Strategist
EVERSANA
Senior Director, Patient and Professional Advocacy
Amylyx Pharmaceuticals
full-time
Posted on:
Origin: • 🇺🇸 United States
Visit company websiteJob Level
Senior
About the role
- Lead the development and execution of strategies to engage patient communities and professional organizations.
- Ensure the patient voice is integrated across the product lifecycle
- Refine and implement a comprehensive patient and professional advocacy strategy aligned with corporate goals.
- Serve as the internal champion for patient-centricity and incorporating patient insights into decision-making across functions including Clinical Development, Clinical Operations, Medical Affairs, Commercial, Regulatory, and Communications.
- Build and maintain trusted relationships with patient advocacy organizations. Serve as the primary liaison between the company and external advocacy stakeholders.
- Lead initiatives to incorporate patient insights into clinical trial design, access strategies, communications, and educational programs.
- Represent the company at patient-focused events, advisory board meetings, and conferences.
- Build and maintain strategic relationships with medical societies and professional organizations to support disease awareness, scientific exchange, and shared advocacy initiatives.
- Partner with internal stakeholders to align advocacy efforts with scientific and medical strategies.
- Work closely with Clinical Development, Market Access, Corporate Communications, Regulatory, and Legal/Compliance to ensure integrated and compliant engagement.
- Support internal training and awareness to deepen employee understanding of the patient experience and to educate on patient advocacy best practices.
- Ensure all advocacy activities comply with regulatory, legal, and ethical standards.
- Manage sponsorships, grants, and partnerships in alignment with company policies.
Requirements
- Bachelor’s degree required; advanced degree in life sciences, public health, or related field preferred.
- 10+ years of experience in patient advocacy, public affairs, or related roles in the pharmaceutical or biotech industry.
- Proven track record of building global advocacy strategies and partnerships.
- Deep understanding of healthcare systems, regulatory frameworks, and patient engagement trends.
- Experience in rare diseases or specialty therapeutics is a plus.
- Strong communication, leadership, and cross-functional collaboration skills.
- Ability to travel up to 20%
