Soleno Therapeutics, Inc.

Manager, Patient Advocacy

Soleno Therapeutics, Inc.

full-time

Posted on:

Location Type: Remote

Location: California • United States

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Salary

💰 $140,000 - $160,000 per year

About the role

  • Organize and track patient advocacy initiatives
  • Schedule and coordinate patient advisory boards, advocacy meetings, webinars, and family events
  • Maintain calendars, project trackers, and action item lists across advocacy projects
  • Support administrative needs and in-person Patient Advocacy events, as needed, and in coordination with Senior Director, Patient Advocacy and Government Affairs
  • Represent Soleno at patient-facing events, conferences, etc. as needed
  • Draft and maintain patient-friendly resources, newsletters, FAQs, and updates
  • Ensure consistency and compliance of all external communications in compliance with regulatory and legal standards
  • Prepare meeting minutes, summaries, and follow-up reports from Patient Advocacy engagements
  • Maintain databases of patient advocacy organizations, key contacts, and stakeholder mapping/interactions
  • Track community inquiries and feedback; log and escalate as appropriate
  • Compile data for internal dashboards, slide decks, and leadership updates
  • Support PA/GA invoices, track expenses, and support budget reconciliation for advocacy activities, including sponsorship and compliance activities
  • Support activities with external vendors (e.g., event planners, design agencies, translation services, etc.)
  • Support contracts and compliance documentation for patient-related activities
  • Provide administrative support for collaboration between Patient Advocacy and Clinical Development, Medical Affairs, and Commercial
  • Coordinate review cycles for patient education materials and advocacy content
  • Assist with compliance submissions and documentation for patient engagement initiatives
  • Collaborate with internal teams to ensure patient input is meaningfully considered across the product lifecycle
  • Support internal training for company employees (clinical, commercial, field teams) on patient perspectives, disease burden, and empathy
  • Track key performance indicators (KPIs) for advocacy programs (i.e., attendance, outreach metrics, attendee satisfaction)
  • Generate regular internal reports summarizing activities, insights, and impact (i.e., PA event summaries, etc.)
  • Maintain compliance records in line with company policies and industry standards
  • Other administrative support of Patient Advocacy function as needed

Requirements

  • Bachelor’s degree in life sciences, communications, public health, or related field
  • 3–7 years of experience in patient advocacy, patient engagement, community relations, or external affairs in the pharmaceutical/biotech or rare disease space
  • Proven track record working with rare disease patient communities and advocacy organizations
  • Strong interpersonal and relationship-building skills
  • Excellent written and verbal communication skills; ability to simplify complex scientific/medical content into patient-friendly terms
  • Analytical mindset — able to use professional expertise to solve moderately complex issues
  • Project management skills; organized, able to drive multiple initiatives concurrently
  • Emotional intelligence, empathy, and sensitivity to patient experiences
  • Willingness to travel to events when needed (i.e., conferences, advocacy events) - Travel up to 30%
  • Preferred: Understanding of regulatory and compliance constraints around patient engagement
  • Experience using Veeva PromoMats
  • Spanish (or other language) fluency to support diverse patient populations
  • Master’s degree (public health, communications, or related)

Applicant Tracking System Keywords

Tip: use these terms in your resume and cover letter to boost ATS matches.

Hard skills
project managementdata analysisbudget reconciliationcompliance documentationpatient engagementcommunity relationsevent coordinationreport generationstakeholder mappingKPI tracking
Soft skills
interpersonal skillsrelationship-buildingwritten communicationverbal communicationanalytical mindsetemotional intelligenceempathyorganizational skillssensitivity to patient experiencesability to simplify complex content
Certifications
Bachelor’s degreeMaster’s degree