Soleno Therapeutics, Inc.

Manager

• Organize and track patient advocacy initiatives
• Schedule and coordinate patient advisory boards, advocacy meetings, webinars, and family events
• Maintain calendars, project trackers, and action item lists across advocacy projects
• Support administrative needs and in-person Patient Advocacy events, as needed, and in coordination with Senior Director, Patient Advocacy and Government Affairs
• Represent Soleno at patient-facing events, conferences, etc. as needed
• Draft and maintain patient-friendly resources, newsletters, FAQs, and updates
• Ensure consistency and compliance of all external communications in compliance with regulatory and legal standards
• Prepare meeting minutes, summaries, and follow-up reports from Patient Advocacy engagements
• Maintain databases of patient advocacy organizations, key contacts, and stakeholder mapping/interactions
• Track community inquiries and feedback; log and escalate as appropriate
• Compile data for internal dashboards, slide decks, and leadership updates
• Support PA/GA invoices, track expenses, and support budget reconciliation for advocacy activities, including sponsorship and compliance activities
• Support activities with external vendors (e.g., event planners, design agencies, translation services, etc.)
• Support contracts and compliance documentation for patient-related activities
• Provide administrative support for collaboration between Patient Advocacy and Clinical Development, Medical Affairs, and Commercial
• Coordinate review cycles for patient education materials and advocacy content
• Assist with compliance submissions and documentation for patient engagement initiatives
• Collaborate with internal teams to ensure patient input is meaningfully considered across the product lifecycle
• Support internal training for company employees (clinical, commercial, field teams) on patient perspectives, disease burden, and empathy
• Track key performance indicators (KPIs) for advocacy programs (i.e., attendance, outreach metrics, attendee satisfaction)
• Generate regular internal reports summarizing activities, insights, and impact (i.e., PA event summaries, etc.)
• Maintain compliance records in line with company policies and industry standards
• Other administrative support of Patient Advocacy function as needed

Manager, Patient Advocacy