Cure HHT

Director

• **Key Responsibilities**
• 1. Strategic Fundraising Leadership
• - Partner with the COO and CEO to design and implement a major gifts strategy aligned with Cure HHT’s strategic plan and top priorities.
• - Create a multi-year fundraising roadmap that includes major gifts, leadership annual giving, and campaign readiness.
• - In collaboration with leadership, develop fundraising goals, case statements, and prospect strategies.
• - Establish key performance metrics, reporting, and dashboards to track progress and inform leadership decisions.
• 2. Donor Portfolio Development & Management
• - Lead the creation of a major gifts pipeline leveraging data, networks, and prospect research tools.
• - Build and manage a portfolio of individual and foundation prospects with the capacity to give $10,000+.
• - Conduct personalized cultivation, solicitation, and stewardship.
• - Develop proposals and materials that translate Cure HHT’s awareness, research, clinical access to care, and advocacy impact into compelling donor opportunities.
• - Close gifts by securing gift decisions in a timely manner.
• - Oversight of Annual Appeals and Fundraising Events targeting donors up to $10K.
• 3. Infrastructure & Systems Building
• - Create standardized templates, donor correspondence, and stewardship reports to professionalize the development function.
• - Collaborate with Finance to align gift documentation, pledge tracking, and reporting.
• - Identify and manage vendors, consultants, or freelancers as needed (e.g., grant writers, designers, researchers).
• 4. Cross-Organizational Collaboration
• - Partner with Marketing & Communications to craft donor-centered storytelling and campaign collateral.
• - Coordinate with Programs and Research teams to translate scientific progress and patient impact into fundable initiatives.
• - Engage with the Board of Directors, Scientific Advisory Board, and Centers of Excellence to build relationships with potential donors and champions.
• 5. Donor Stewardship & Relationship Management
• - Develop a tiered stewardship strategy to ensure donors receive meaningful, timely, and personalized acknowledgment.
• - Produce impact reports, recognition opportunities, and engagement touch points that deepen donor loyalty.
• - Support leadership and Board members in preparing for donor meetings and follow-up actions.

Director of Major Gifts

Financial Planning and Analysis

• Responsible for managing the financial lifecycles of federal and industry grants and operational finances, including gift entry and monthly reconciliation, ensuring compliance with funder requirements, alignment with organizational budgets, and transparent reporting to leadership.
• Budget Management: Create, monitor, and reconcile grant budgets; track expenditures against budget-to-actuals; prepare updates for leadership and funders.
• Subaward & Contract Oversight: Develop, negotiate, and execute subaward agreements; ensure compliance with OMB Uniform Guidance and federal cost principles; monitor subrecipient reporting and performance.
• Compliance & Reporting: Prepare and submit required financial reports; maintain accurate documentation; execute federal draw requests through PMS.
• Invoice Processing & Reconciliation: Manage invoice intake, coding approvals, and payment workflows in Bill.com; maintain synchronized trackers; align invoices, indirect/fringe, and cumulative totals with agreement terms.
• Month-End Close: Coordinate grant-related reconciliations with accounting and program staff, including unpaid invoices, finance reports, credit card summaries, and monthly statements; prepare support for drawdowns and confirmations.
• Weekly electronic gift entry, including online credit card giving, employee giving programs, wire transfers, donor-advised funds, and other gifts.
• Process AP/AR, vendor onboarding, and expense reimbursements with accurate coding and documentation.
• Support monthly close activities, account reconciliations, and preparation of management reports.
• Assist with annual budget development, audit requests, and financial policy updates.
• Collaborate with Development staff on grant proposal budgets and reporting needs.

Director of Major Gifts

Grants & Finance Specialist