Director – U.S. Patient Advocacy

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Director of U.S. Patient Advocacy at Lundbeck developing strategies for rare disease engagement.

Posted 4/17/2026full-timeDeerfield • Illinois • 🇺🇸 United StatesLead💰 $225,000 - $265,000 per yearWebsite

About the role

Key responsibilities & impact

Develop and execute U.S. patient advocacy strategy for a designated therapeutic area(s) in neuroscience
Implement strategies to drive early treatment urgency, disease awareness, support important regulatory and commercial milestones, and build an integrated advocacy plan in alignment with Corporate Affairs, Medical, HEOR, Patient Services, and Market Access
Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance
Lead and execute communications and data dissemination plans with patient advocacy organizations, including the development of community letters, infographics, and presentation materials
Develop community councils and other forums to identify, publish on, and address community unmet needs
Identify opportunities and build strategic solutions and innovative initiatives to address community unmet needs and to anticipate access challenges
Manage patient advocacy events and engage employees to advocate for the patient voice and experience
Represent Lundbeck at scientific conferences and forums to support partnerships and outcomes for patients
Build and maintain U.S. Patient Advocacy annual plan and budget in alignment with cross-functional colleagues
Ensure compliant, ethical, and transparent stakeholder engagement and communications

Requirements

What you’ll need

Accredited bachelor’s degree
8+ years of pharma / biotech experience
5+ years of external engagement / public affairs / patient advocacy experience
Direct experience leading rare disease patient advocacy commercialization launch strategy and execution
Excellent communications skills and strong interpersonal skills that can build and progress relationships internally as well as externally
Experience developing and managing annualized patient advocacy plans and budgets
Solid understanding of the therapeutic lifecycle from pre-clinical to post-commercialization
Knowledge of Legal, Regulatory, & Compliance guidelines for engaging patient advocacy communities
Ability to work in a fast-paced environment, prioritize tasks, and successfully management multiple projects in a matrixed organization

Benefits

Comp & perks

flexible paid time off (PTO)
health benefits to include Medical, Dental and Vision
company match 401k
eligibility to participate in the company’s long-term incentive plan

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills & Tools

patient advocacy strategyregulatory compliancecommercialization strategybudget managementdata disseminationcommunity engagementevent managementtherapeutic lifecyclestrategic solutionsinnovative initiatives

Soft Skills

excellent communication skillsinterpersonal skillsrelationship buildingprioritizationproject managementcollaborationtrust buildingstrategic thinkingproblem solvingadaptability

Certifications

accredited bachelor’s degree