Associate Director – Patient Advocacy, LGMD

BridgeBio

full-time

Posted on: 1/13/2026

Location Type: Remote

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💰 $226,000 - $260,000 per year

About the role

The Associate Director/Director, Patient Advocacy, LGMD is responsible for leading global patient advocacy strategy and execution for Limb-Girdle Muscular Dystrophy (LGMD).
This role builds and sustains compliant, long-term relationships with LGMD patient advocacy organizations, community leaders, and patient representatives, with a focus on understanding lived experience and translating patient insights into meaningful organizational action.
Serving as a central liaison across BridgeBio, the Associate Director partners closely with Medical Affairs, Communications, Marketing, Clinical Development, Legal, and Compliance to ensure patient perspectives are appropriately reflected in education, engagement, and outreach activities.
This role contributes to cross-functional planning by elevating patient and caregiver needs, identifying unmet gaps, and supporting alignment between advocacy initiatives and program objectives.
Through external engagement and internal collaboration, the Associate Director/Director, Patient Advocacy, LGMD reinforces BridgeBio’s commitment to putting patients first by ensuring advocacy efforts are thoughtful, strategic, and integrated throughout the development lifecycle of LGMD programs.

Bachelor’s degree (or higher); a post-graduate degree is valued
5 years in an external-facing role (industry, nonprofit, clinical, etc.); experience working in a healthcare or nonprofit setting preferred
Demonstrated ability to build relationships with patient advocates, professional associations, or other stakeholders is required
Strong written, verbal, and presentation communication skills are required; the candidate should be flexible, personable, and able to easily collaborate with colleagues and advocates
The ability to travel up to 50% domestically (primarily on weekends) is required. Must have easy access to a major international airline travel hub

Benefits

Market leading compensation
401K with 100% employer match on first 3% & 50% on the next 2%
Employee stock purchase program
Pre-tax commuter benefits
Referral program with $2,500 award for hired referrals
Comprehensive health care with 100% premiums covered - no cost to you and dependents
Mental health support via Spring Health (6 therapy sessions & 6 coaching sessions)
Hybrid work model - employees have the autonomy in where and how they do their work
Unlimited flexible paid time off - take the time that you need
Paid parental leave - 4 months for birthing parents & 2 months for non-birthing parents
Flex spending accounts & company-provided group term life & disability
Subsidized lunch via Forkable on days worked from our office

Tip: use these terms in your resume and cover letter to boost ATS matches.

relationship buildingcommunication skillscollaborationflexibilitypersonabilitypresentation skillswritten communicationverbal communication

Bachelor's degreepost-graduate degree