Cure HHT

Director of Major Gifts

Cure HHT

full-time

Posted on:

Location Type: Remote

Location: Remote • 🇺🇸 United States

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Job Level

Lead

About the role

  • **Key Responsibilities**
  • 1. Strategic Fundraising Leadership
  • - Partner with the COO and CEO to design and implement a major gifts strategy aligned with Cure HHT’s strategic plan and top priorities.
  • - Create a multi-year fundraising roadmap that includes major gifts, leadership annual giving, and campaign readiness.
  • - In collaboration with leadership, develop fundraising goals, case statements, and prospect strategies.
  • - Establish key performance metrics, reporting, and dashboards to track progress and inform leadership decisions.
  • 2. Donor Portfolio Development & Management
  • - Lead the creation of a major gifts pipeline leveraging data, networks, and prospect research tools.
  • - Build and manage a portfolio of individual and foundation prospects with the capacity to give $10,000+.
  • - Conduct personalized cultivation, solicitation, and stewardship.
  • - Develop proposals and materials that translate Cure HHT’s awareness, research, clinical access to care, and advocacy impact into compelling donor opportunities.
  • - Close gifts by securing gift decisions in a timely manner.
  • - Oversight of Annual Appeals and Fundraising Events targeting donors up to $10K.
  • 3. Infrastructure & Systems Building
  • - Create standardized templates, donor correspondence, and stewardship reports to professionalize the development function.
  • - Collaborate with Finance to align gift documentation, pledge tracking, and reporting.
  • - Identify and manage vendors, consultants, or freelancers as needed (e.g., grant writers, designers, researchers).
  • 4. Cross-Organizational Collaboration
  • - Partner with Marketing & Communications to craft donor-centered storytelling and campaign collateral.
  • - Coordinate with Programs and Research teams to translate scientific progress and patient impact into fundable initiatives.
  • - Engage with the Board of Directors, Scientific Advisory Board, and Centers of Excellence to build relationships with potential donors and champions.
  • 5. Donor Stewardship & Relationship Management
  • - Develop a tiered stewardship strategy to ensure donors receive meaningful, timely, and personalized acknowledgment.
  • - Produce impact reports, recognition opportunities, and engagement touch points that deepen donor loyalty.
  • - Support leadership and Board members in preparing for donor meetings and follow-up actions.

Requirements

  • **Education & Experience**
  • - Bachelor’s degree required; advanced degree or CFRE preferred.
  • - 7–10 years of progressive fundraising experience, including at least 3 years in major gifts.
  • - Demonstrated success in securing five- and six-figure gifts from individuals and foundations.
  • - Experience building or scaling fundraising programs—ideally in a health, science, or rare-disease environment.
  • **Skills & Competencies**
  • - Strategic, entrepreneurial thinker with the ability to build systems from the ground up.
  • - Exceptional relationship-building, storytelling, and presentation skills.
  • - Track record and evidence of success in closing major gifts at levels between $10K and $1M
  • - Self-motivated and comfortable operating independently while collaborating cross-functionally.
  • - Data-informed and organized; proficient in Salesforce NPSP or comparable CRM.
  • - Strong project management skills with the ability to balance multiple priorities.
  • - Passion for Cure HHT’s mission and comfort working in a lean, fast-moving nonprofit.
Benefits
  • **Compensation & Benefits**
  • Cure HHT offers a competitive salary commensurate with experience, medical, dental, vision benefits, generous PTO, remote work, and opportunities for professional development and leadership growth in a dynamic, mission-driven organization.
  • **Equal Opportunity Statement**
  • Cure HHT is an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees.

Applicant Tracking System Keywords

Tip: use these terms in your resume and cover letter to boost ATS matches.

Hard skills
fundraisingmajor gifts strategyprospect researchproposal developmentgift documentationpledge trackingdonor stewardshipproject managementdata analysiscampaign development
Soft skills
strategic thinkingrelationship buildingstorytellingpresentation skillsself-motivatedcollaborationorganizational skillsentrepreneurial mindsetcommunicationadaptability
Certifications
Bachelor's degreeadvanced degreeCFRE