Provide high-touch, education, support & resources to patients and caregivers regarding the gene therapy treatment process, including pre-treatment considerations, treatment day logistics, and post-treatment expectations.
Educate the patient on bluebird gene therapy coverage based on their benefits and the steps needed to gain prior authorization to ensure understanding of the process for access.
Assess patient and caregiver needs, tailoring resources and education to ensure understanding, confidence, and support.
Serve as a trusted point of contact for patients, ensuring questions are answered in a compassionate and compliant manner.
Guide patients through the treatment journey, coordinating support services such as travel, lodging, reimbursement, and offering connection to resources.
Identify potential barriers to treatment and implement proactive strategies to resolve access challenges in collaboration with cross-functional partners.
Monitor patient milestones and adherence to treatment timelines, ensuring delivery of high-quality and timely support.
Educate internal and external stakeholders on the program to drive awareness.
Work with Qualified Treatment Centers (QTCs) to monitor patient status and facilitate patient support.
Partner with QTCs, healthcare providers, and advocacy organizations to enhance patient and caregiver education, increase awareness of program services, and support treatment readiness.
Communicate key insights and patient trends back to internal stakeholders to continuously refine engagement approaches and optimize program design.
Contribute to the design and implementation of patient support initiatives, work instructions, and best practice resources.
Utilize data, analytics, and patient feedback to identify opportunities for program improvement and drive execution excellence.
Requirements
BA/BS with a minimum of 10 years of pharmaceutical/biotech patient services experience with demonstrated expertise in access/reimbursement and complex case management.
Direct experience working with patients and/or caregivers.
Strong knowledge of payer systems, reimbursement processes, and patient assistance resources.
Exceptional communication skills, with the ability to engage patients, caregivers, and healthcare providers with empathy and clarity.
Deep empathy, resilience, creativity in problem-solving, attention to detail, and action-oriented.
Proficiency in data analysis and application of performance metrics to inform program improvements.
Knowledge of regulatory and compliance guidelines for industry and ability to evaluate unique scenarios in the context of program SOPs, policies and OIG requirements.