Associate Director, Patient Advocacy

argenx

Associate Director for US Patient Advocacy in a biotech company focusing on autoimmune diseases. Responsible for developing and implementing patient advocacy strategies and engagement plans.

Posted 5/5/2026full-timeRemote • 🇺🇸 United StatesSenior💰 $164,000 - $225,500 per yearWebsite

About the role

Key responsibilities & impact

Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies.
Effectively balance and prioritize both pipeline indications and in market indications (i.e. gMG and CIDP).
Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events
Build and manage relationships with US PAOs
Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc.
Provide local support to patient services team during the patient onboarding process
Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary
Define and measure business impact at local, regional, and national events
Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community
Inform local market engagement by generating and synthesizing insights for teams
Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy
Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications
Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process.
Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues
Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working

Requirements

What you’ll need

Bachelor’s Degree required (advanced degree preferred)
10 years industry or related experience
Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities
Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area
Veeva experience and proficiency required
Experience with rare disease patient interactions and compliance required
Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings). Flexible schedule will be developed to accommodate evening and weekend work.

Benefits

Comp & perks

Comprehensive benefits package, including but not limited to retirement savings plans
Health benefits

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills & Tools

patient advocacy strategiesengagement plansbusiness impact measurementevent managementbudgeting processprogram implementationcompliance managementpatient onboarding supportinsight generationtherapeutic area knowledge

Soft Skills

relationship buildingcross-functional collaborationcommunity advocacystrategic prioritizationeffective communicationflexibilityorganizational skillsleadershipproblem-solvingevent representation

Certifications

Bachelor’s Degreeadvanced degree (preferred)