Community Manager

• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers
• Empower patients and caregivers with knowledge and tools to navigate their DMD or SMA journey
• Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s), ensuring adherence to company-approved materials and guidelines
• Provide resources and education on treatment expectations
• Develop relationships with local advocacy chapter leads and attend events throughout the country by hosting the Novartis table, meeting with DMD or SMA families, answering questions and delivering presentations
• Reactively respond to virtual inquiries from patients and/or caregivers that come through via phone or email
• Hold virtual meetings with local patient advocacy leads and/or local communities to provide education; these events may occur on weekends or weekdays after hours
• Provide insights/learnings to cross functional teams to help support development of educational materials, presentations, and resources to further patient and caregiver understanding
• Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content
• Document interactions and feedback from patients and caregivers to improve the education program and support outcomes tracking
• Contribute and participate in required internal and business reviews; may include preparation of meeting materials
• Contribute and participate in functional planning for tactical plan, budgeting, etc.
• Maintain high scientific and current knowledge about responsible products and therapeutic areas and maintain working knowledge of required platforms and processes (Concur, Salesforce, FUSE, etc.)

AD, Patient & Community Liaison Northeast

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
• Maintain documentation requirements for clinical licenses and clinical certification.

Patient & Community Educator – Missouri Territory

• Monitor project budgets, timelines, and deliverables to ensure effective cross-team coordination.
• Manage regular reports and updates for funders, and internal/external stakeholders.
• Maintain organized project documentation and communication channels to support efficient project delivery.
• Assist with grant tracking and documentation using tools such as Notion and Airtable.
• Partner with the Development team to monitor contracts and identify potential grant and consulting opportunities.
• Support the submission of proposals to communities and funders to secure mission-aligned projects.
• Maintain cumulative reports and track key implementation dates and project milestones.
• Communicate with grantees post-implementation to collect annual reports and verify HubSpot setup.
• Track relevant news and community announcements to support outreach and planning efforts.

Community Manager jobs in Rhode Island

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AD, Patient & Community Liaison Northeast

Patient & Community Educator – Missouri Territory

Community Program Coordinator