Director, Patient Advocacy & Engagement – EMEA

Ultragenyx

Ultragenyx rare-disease patient advocacy director leading EMEA engagement strategy. Building patient relationships, shaping regional priorities, and partnering on access and reimbursement.

Posted 8/4/2026full-timeBerlin • 🇩🇪 GermanyLeadWebsite

Core Competencies

Role fit

Core Competencies

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Demonstrates extensive experience in patient advocacy within the biotechnology and pharmaceutical industries, with a strong focus on building relationships and navigating stakeholder engagement. Proven ability to manage budgets and foster collaboration with regulatory agencies and advocacy leaders.

Highest-signal resume keywords

Patient Advocacy ExperienceBiotechnology Industry ExpertiseStakeholder EngagementBudget ManagementLeadership in Patient Advocacy

ATS Keywords

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Applicant Tracking System Keywords

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Hard Skills

Patient AdvocacyStakeholder EngagementBudget ManagementStrategic InsightsRegulatory Awareness

Soft Skills

Relationship BuildingCollaborationCommunication

Industry Keywords

BiotechnologyPharmaceuticalRare DiseasePatient Focused PrioritiesAccess and Reimbursement

About the role

Key responsibilities & impact

Build and steward authentic relationships based on respect, understanding and advancing patient focused priorities
Embed patient and caregiver perspective and strategic insights from communities across business strategy, accelerating existing efforts and identifying new opportunities to meaningfully partner
Navigate internal stakeholder engagement and facilitate the compliant exchange of complex scientific information related to research, product development and commercialization
Partner with Government Affairs, Communications and Regulatory to ensure patient, caregiver and advocacy leader awareness of and engagement with regulatory agencies and policymakers on access and reimbursement issues
Demonstrate leadership within the Patient Advocacy team, across Ultragenyx, and externally to foster a best-in-class patient advocacy function
Oversee the patient advocacy budget and manage external strategic partners

Requirements

What you’ll need

10+ years within the biotechnology/pharmaceutical industry
8+ years of patient advocacy experience
Rare disease experience preferred
Bachelor's degree is required
Travel expected to be between 30%

Benefits

Comp & perks

Generous vacation time and public holidays observed by the company
Volunteer days
Long term incentive and Employee stock purchase plans or equivalent offerings
Employee wellbeing benefits
Fitness reimbursement
Tuition sponsoring
Professional development plans
Benefits vary by region and country