Executive Director – Patient Advocacy
Kyverna Therapeutics
full-time
Posted on:
Location Type: Remote
Location: Remote • 🇺🇸 United States
Visit company websiteSalary
💰 $275,000 - $300,000 per year
Job Level
Lead
About the role
- Develop and execute a long-term patient advocacy strategy aligned with Kyverna’s corporate objectives and the evolving needs of patient communities.
- Serve as a strategic liaison between Patient Advocacy and cross-functional partners including Medical Affairs, Clinical Development, and Commercial to ensure patient insights inform decision-making across the organization, including clinical development strategies and patient support initiatives.
- Develop and maintain deep, trusted relationships within the autoimmune and rare disease patient advocacy communities as well as relevant CAR T-cell therapy organizations and associated stakeholders.
- Develop and implement programming with patient groups where Kyverna may provide appropriate support and engagement, including, but not limited to, disease awareness campaigns, patient support initiatives, patient roundtables, clinical trial recruitment and public policy work.
- Represent Kyverna at key patient advocacy meetings and conferences.
- Manage corporate sponsorships, programs and initiatives in partnership with patient advocacy groups.
- Develop the relevant patient materials needed to support sponsorships and/or educational initiatives with patient advocacy groups.
- Partner with Corporate Communications and other relevant functions to highlight patient sponsorships and related initiatives internally and externally, as appropriate.
- Manage corporate grants to ensure compliance with policies and reporting requirements.
- Monitor trends within the patient advocacy community and provide relevant strategic insights and updates to leadership as well as feedback to leadership regarding the patient advocacy community’s perception of the company and associated activities.
- Prepare senior leaders for meetings with the patient advocacy community and provide feedback post engagements.
- Support Kyverna’s community engagement efforts with charitable organizations.
- Ensure compliance with all relevant rules and regulations associated with engagement with non-profit organizations and fulfill any reporting requirements.
Requirements
- Bachelor’s or Master’s degree in Communications, Business, Life Sciences, Biotechnology, or a related field.
- 15+ years of experience building and leading patient advocacy relationships and programs with experience in CAR-T, cell therapy, autoimmune, and/or rare diseases strongly preferred.
- Strong track record for partnering and collaborating with business leaders to understand business goals.
- Excellent communication skills, with the ability to translate complex scientific data into patient-friendly language.
- Ability to build strong relationships and work effectively and credibly with senior leadership and a wide variety of teams across a company.
- Strong personal network of patient advocacy relationships.
- Understanding of regulations associated with biotech/pharma companies’ engagement with non-profits and patient advocacy organizations.
- Comfortable operating and driving results in a dynamic and highly innovative environment.
- Detail-oriented, well-organized self-starter; experienced in managing multiple projects simultaneously; flexibility and results-oriented focus are essential.
Applicant Tracking System Keywords
Tip: use these terms in your resume and cover letter to boost ATS matches.
Hard skills
patient advocacy strategyclinical development strategiesdisease awareness campaignsclinical trial recruitmentpublic policy workcorporate sponsorship managementgrant managementcompliance reportingcommunity engagementprogram development
Soft skills
communication skillsrelationship buildingcollaborationstrategic insightsorganizational skillsdetail-orientedself-starterflexibilityresults-orientedleadership engagement
Certifications
Bachelor’s degreeMaster’s degree