Community Manager

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
• Maintain documentation requirements for clinical licenses and clinical certification.

Patient & Community Educator – Missouri Territory

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain disease-state and product expertise through continuing education and attendance at relevant symposia, conferences, and other educational opportunities.
• Utilize only approved resources and messages to perform function responsibilities.
• Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies.
• Maintain documentation requirements for clinical licenses and clinical certification.

Patient & Community Educator – South Territory

• Build and maintain relationships with community-based organizations, providers, schools, faith-based groups, coalitions, and local stakeholders to strengthen partnerships and improve member outcomes
• Represent the organization at community events, health fairs, meetings, coalitions, conferences, and stakeholder forums
• Identify opportunities for collaboration that align with organizational priorities, health outcome goals, and population health strategies
• Serve as liaison between internal teams and external partners to address community needs and improve access to services
• Drive and support outreach strategies that increase awareness of member benefits, preventive services, and community resources
• Apply knowledge of public health principles and social drivers of health to identify barriers impacting members and communities
• Monitor community trends, disparities, and emerging needs to inform outreach priorities and organizational strategy
• Accurately document outreach activities, events, referrals, and partnership engagement in QuickBase or other tracking systems
• Maintain accurate data entry to ensure integrity of records and reporting
• Conduct presentations to community groups in accordance with current approved communications and marketing plans and state regulations
• Maintain working knowledge of covered benefits and program changes
• Regular travel throughout assigned region for on-site visits, presentations, coalition meetings, member engagement, and community outreach activities

Community Engagement Liaison

• Manage and moderate NoGigiddy's online community spaces — Discord, Facebook Group, Reddit, and social comments
• Respond to member questions, posts, and feedback in a timely and authentic brand voice
• Create regular community content — polls, threads, announcements, and conversation starters
• Identify and recognize top community members and power users
• Collect community feedback and surface insights to the product and content teams
• Coordinate with the social and support teams to resolve escalated issues
• Monitor community health metrics and report trends weekly

• Provide strategic leadership and direction for Community Infrastructure programs to advance organizational priorities, rural community impact, and long-term program growth.
• Lead and support Regional Area Directors to ensure effective program delivery, operational accountability, staff development, and consistent quality of technical assistance and community engagement services.
• Oversee implementation of multi-year grants and contracts, ensuring compliance, achievement of deliverables, successful funder engagement, and alignment with program goals.
• Manage departmental budgets, revenue targets, and resource development efforts, including identifying earned-income opportunities and supporting fundraising and partnership initiatives.
• Serve as a collaborative member of the Senior Leadership Team to strengthen cross-department coordination, operational excellence, workforce planning, and organizational innovation.
• Represent the organization with federal, state, philanthropic, and national partners while advocating for rural infrastructure investment, policy priorities, and community development initiatives.

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Patient & Community Educator – Missouri Territory

Patient & Community Educator – South Territory

Community Engagement Liaison

Community Manager

Senior Director – Community Infrastructure