Community Manager

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
• Maintain documentation requirements for clinical licenses and clinical certification.

Patient & Community Educator – Missouri Territory

• Strengthening capacity of island and coastal communities to navigate housing challenges
• Working closely with municipalities and housing stakeholders to advance strategies for housing supply, affordability, and sustainability
• Supporting municipal partners in developing housing strategies and improving policies
• Managing housing-related work and projects from planning to implementation
• Engaging with philanthropy staff on proposal development and fundraising strategy
• Supervising staff and coaching team members for professional growth

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Patient & Community Educator – Missouri Territory

Senior Community Development Officer – Housing