Community Manager

• Organize and execute patient and caregiver engagement activities in a variety of settings including one-on-one settings, meetings, programs, and conferences of all sizes, and using a variety of communication media.
• Conduct educational in-services for patients, caregivers, healthcare providers, clinic teams, and advocacy organizations.
• Support national and regional advocacy events, conferences, and community programs, including those held on evenings or weekends as required.
• Identify and share insights with internal teams and National Director PACE & DRS, from field interactions to inform broader educational strategy.
• Collaborate cross-functionally with Residential Stakeholder Director (DRSs), Rare Disease Specialists (RDS), Regional Access Directors (RADs), Medical, Advocacy, and Marketing to ensure timely support and provide education on VYKAT XR to patients and caregivers.
• Serve as a trusted, accessible resource to the PWS community, by providing educational support, while not directing care or offering medical advice.
• Support Caregiver Advisory Boards, including identification and coordination of appropriate advisors.
• Keep timely documentation within PRM system to capture activities with patients, caregivers, and HCPs.
• Maintain disease-state and product expertise through continuing education and attendance at relevant symposia, conferences, and other educational opportunities.
• Utilize only approved resources and messages to perform function responsibilities.
• Respect the privacy of patients and their caregivers/families and manage all personal information in accordance with all laws, regulations, and policies.
• It is the responsibility of all company employees who receive information pertaining to a possible adverse event (AE) or serious adverse event (SAE) to understand that the appropriate clinical and regulatory personnel must be notified of the event promptly upon receipt regardless of severity.
• MBOs will be established to measure the effectiveness of PACE educational activities on a continual basis and adjusts course where appropriate.
• Maintain documentation requirements for clinical licenses and clinical certification.
• This is not a promotional selling role and is not accountable for delivery of organization sales goals.

Patient & Community Educator – Southern California Territory

• Support Community-based Early Childhood Continuums Initiative (50%)
• Capacity Building and Technical Assistance (40%)
• Review Community Engagement plans with Community Facilitators and provide guidance to increase impact
• Observe and participate when possible in community events in rural communities and provide technical assistance and feedback to partner staff and community partners
• Oversee the coordination and planning of onsite and virtual partner staff trainings
• Review population level data to track the effectiveness of community-wide initiatives
• Develop action plans for underperforming program sites
• Ensure Community Facilitators and partners have access to strong knowledge management tools and resources needed for program implementation, monitoring, sharing practices, and managing daily operations
• Support inclusion and accessibility of community meetings and initiatives to ensure that all community events and programs are accessible and welcoming to members of the community, addressing any barriers or challenges they may face.
• Provide culturally sensitive support and resources to individuals and families within Continuum communities, recognizing and addressing unique needs and challenges.
• Align Save the Children and national partner resources, training and technical assistance to local community needs.
• With the ECAS Early Childhood Continuums Lead, convene quarterly Early Childhood Continuums Community of Practice meetings to facilitate sharing of best practices and lessons learned between EC Continuums Communities.
• Strengthen community capacity to influence issues concerning children, empowering community members to hold government, schools, businesses and community organizations accountable for policies, programs, and services that directly impact the community.
• Coordinate with colleagues and partners to deliver training opportunities to partners across the state in the areas of child development and education.
• Provide administrative and logistical support for onsite and remote training and networking events.
• Data Collection and Reporting (10%): Support the completion of comprehensive coalition assessments, capturing baselines to measure improvements, identify gaps, and address trends over time.
• Assist ECAS in developing, disseminating, and collecting any community, partner and beneficiary surveys.
• In collaboration with the ECAS state backbone team, provide information on targets and performance to goals for proposals and reports.
• Collect storytelling assets, such as photos, videos, and testimonies.
• Coordinate Potential Program Expansion (50%)
• Lead in-state networking and partnership development across the early childhood and education sectors, engaging government agencies, schools, and community organizations to surface opportunities and build strategic relationships.
• Identify and refine geographic and programmatic partnership priorities to guide the potential expansion strategy, resource allocation, and decision-making.
• Conduct landscape and needs assessments to understand community priorities and strengths, service gaps, and alignment with organizational programs and services.
• Promote culturally grounded, community-driven approaches by engaging local leaders, elders, and cultural practitioners in exploration and planning.
• Monitor relevant state and local policy developments that may influence potential expansion feasibility, funding opportunities, or program design.
• Coordinate exploratory site visits, listening sessions, and stakeholder convenings to validate program alignment and deepen understanding of community context.
• Partner with Impact & Evidence and Marketing & Growth teams to shape, pursue, and support funding proposals aligned with potential expansion goals.
• Collaborate with external experts and colleagues to integrate Native Hawai‘ian perspectives and practices into program design, organizational policies, and partnership approaches.

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Patient & Community Educator – Southern California Territory

Community Liaison Advisor, Hawai‘i